Asturies
ASTURSALUD (ENFERMEDADES RARAS)
OBSALUDASTURIAS (Observatorio de la Salud de Asturias)
Asociaciones relacionadas con las Enfermedades Raras
Nacional
IIER (Instituto de Investigación en Enfermedades Raras)
FEDER (Federación Española de Enfermedades Raras)
CREER (Centro de referencia estatal de atención a personas con enfermedades raras y sus familias)
Internacional
IRDIRC (International Rare Diseases Research Consortium)
ICORD (International Conferences for Rare Diseases and Orphan Drugs)
DG SANCO Rare Diseases (European Commission for Rare Diseases)
EPIRARE (European Platform of Rare Diseases Registries)
EUROPLAN (European Project for Rare Diseases National Plans Development)
EUCERD (European Union Committee of Experts on Rare Diseases)
EURORDIS (European Organisation for Rare Diseases)
ORPHANET (The portal for rare diseases and orphan drugs)
ORPHADATA (Free access data from Orphanet)
EUROCAT (European Surveillance of Congenital Anomalies)
EUROmediCAT (Safety of medication use in pregnancy)
Centro Nazionale Malattie Rare (Registri Nazionale Malattie Rare, Italia)
NORD (National Organization for Rare Disorders, USA)
ORDR (Office of Rare Disorders Research, USA)
CORD (Canadian Organization for Rare Disorders)
OMIM (Online Mendelian Inheritance in Man)
